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U.S. Department of Health and Human Services Office of Disease Prevention and Health Promotion

Traumatic Brain Injury Model Systems National Database (TBIMS NDB)

Supplier
Craig Hospital, TBIMS National Data and Statistical Center, Englewood, Colorado
Years Available
1989 to present
Periodicity
Continuous. Estimates will be calculated using three-year averages.
Mode of Collection
Data are collected through an in-person, structured interview using the Glasgow Outcome Scale – Extended (GOS-E) (Wilson et al.,1998; Wilson et al., 2021); and TBIMS NDB Form 1 and Form 2 for additional variables, including demographic variables.
Description
The TBIMS NDB is a nationally representative prospective, longitudinal, multicenter administrative database. It is the largest TBI longitudinal database in the world, and includes data on preinjury, injury, acute care, rehabilitation, and outcomes characteristics. Funded continuously by the National Institute on Disability, Independent Living, and Rehabilitation Research since 1989, the database includes data on over 18,000 individuals from 23 TBIMS Centers nationwide (Dijkers et al., 2018; Tso et al., 2021). The TBIMS NDB is stripped of identifiers to create a de-identified database for public use. The data are centrally managed by the TBIMS National Data and Statistical Center (TBIMS NDSC) and are publicly available at https://www.tbindsc.org.
Population Covered
Adults 18 years or older who received inpatient rehabilitation for TBI in the United States and were discharged alive.
Methodology
A prospective sample of consenting participants is enrolled during acute rehabilitation and followed prospectively, primarily via telephone interview, at 1, 2, and 5 years post injury and every 5 years thereafter. Demographic, injury, and rehabilitation discharge characteristics are used to weight the sample to the U.S. population for adults 18 and older who receive acute rehabilitation for a primary diagnosis of TBI. Sampling weights are adjusted for non-responder bias at 5-years post injury.
Response Rates and Sample Size
The achieved follow-up rates are as follows: 1-year post injury (87%); 2 years post injury (85%); 5 years post injury (84%); 10 or more years post injury (83%). There are over 18,000 participants currently in the TBIMS NDB and approximately 560 new participants are expected to be enrolled each year.
Interpretation Issues
The data can only be extrapolated (applied) to adults who are 18 years or older, who receive acute rehabilitation for a primary diagnosis of TBI in the U.S.
References
Traumatic Brain Injury Model Systems National Data and Statistical Center
https://www.tbindsc.org/